These listings are examples of organizations across the state. This is not meant to be an exhaustive list, and additional resources may be available in certain areas.
Resources listed in this directory are directly are often linked to regional Community Mental Health Centers. Often, and especially with children under the age of three and for adults, a local Community Mental Health Center will be the point of entry for an individual to gain access to many programs and services. For school-aged children and adolescents, the most direct route to services is often through the local public school system.
Schools cannot discriminate based on disability. If you have a child with a disability and have concerns about educational programs that your child may be entitled to or eligible for, contact your local public school system.
Faith Organizations Consider the following issues when looking for a place of worship:
– Are the buildings and sanctuary accessible, welcoming and inclusive?
– Are the programs or ministries accessible, welcoming and inclusive?
– Are the fellowship or social activities accessible, welcoming and inclusive?
The National Center for Prenatal and Postnatal Down Syndrome Resources, administered through HDI was created to insure that all parents and prospective parents receive accurate, balanced, and scientifically up-to-date information at the point of a prenatal or postnatal Down syndrome diagnosis.
Respite Care consists of short term and temporary mental health or therapeutic home or adult treatment facility care to families with members who have disabilities, so that the caregivers and other family members can take a break from their daily routine of care giving. Respite care can also be offered overnight or for an extended period. Respite care helps alleviate the stress and consistent nature of caring for relatives with disabilities. Respite care also helps prevent burnout on behalf of the caregiver and family members. Furthermore, respite care also provides a change of daily schedule for the child, which can help strengthen both the child’s independence and relationships with others. Depending on the organization or volunteer(s), respite caregivers either visit the homes of these families or require visiting an Adult or Child Foster Care home, day care center or a respite group home. “Host families” or exchange programs consist of other families who also have a member with a disability temporarily caring for a friend or neighbor’s child and vice versa.
Some of the resources listed in this manual include excellent programs that are unfortunately limited in availability. It is important to let your legislators know your thoughts about these programs and services as well as your thoughts about future services.